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Holidays and Grief

December 5, 2014

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The inevitable question grieving people ask at this time of the year is, “How will I ever get through the holidays?” Whether it’s the first or second holiday season they face, the added strains can create increased pressure for people already experiencing the intense feelings of grief. So how do you “get through” them? There is no single answer. Let this be the guiding thought: Do what is comfortable for you.

Be mindful –Anticipating the day is often much worse than the day itself. Recognize that the holidays will be different this year. In addition to the absence of your loved one, you too are different this season. Slow yourself down by taking deep breaths. Do what feels comfortable and remember to take time to nurture yourself.

Plan – Talk over your plans with the family. Respect each other’s choices and needs while preserving your own, and compromise as needed. Avoid additional stress. Decide what you really want to do and make changes where you can. Maybe purchase gift certificates this year instead of dealing with the large crowds at shopping malls, or ask someone else to bake the cookies or holiday dinner.

Consider rituals and traditions – Family traditions may have changed since the death. It may seem like nothing is the same as it used to be or everything is exactly the same, except that your loved one is missing. Rituals support the connection and bond between you and your loved one. Consider honoring your loved one by lighting a candle, donating a gift in his or her memory or creating a new ritual.

Look ahead – The past year has been a change event for you. As you look towards 2015, consider all that has occurred and what you have learned. As you search to find meaning in the loss and revise your life story, you may begin to understand some of what has happened and find a bridge between the past and future that makes sense to you.

Please visit our on-line grief discussions groups.

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Grieving and Giving Thanks

November 7, 2014

thanks2As Thanksgiving and the holiday season approaches, you may be wondering what you have to be thankful for this year. This time of year can be so challenging when loss is at the center of your life. Perhaps this year rather than thinking about being thankful, think more about giving thanks.

You may ask what can I give thanks for? Here are some questions to consider:

What did you learn from the person who died? What life lessons were passed on? How many hugs did that person give you? Or how many meals and deep conversations were experienced? Who taught you how to be a mother, daughter, sister, or aunt – or how to act and dress appropriately? Who cuddled with you? Who did you take long quiet walks with? Who taught you that secret recipe? Who gave you bliss? Perhaps this year you can give thanks for these moments.

In what ways did your loved one make your life sweeter and richer? What was the value of loving this person not only as a family member but as a friend?  Although it is perfectly okay to still grieve and mourn your loss, remember that grief is about love. Give thanks for being able to give and receive love.

Sometimes it’s helpful to slow things down and focus on the small moments of gratitude first. So this holiday season, try to stay in the moment. Taste the first cup of coffee or tea in the morning and be mindful of the warmth it brings. Allow small moments of pleasure and presence to move you toward healing. Being able to notice the small moments of grace are enough for now. In time, these moments may become more frequent and obvious in your life, as may the gifts your loved one has bestowed in your heart forever.

Give thanks this year for the gifts of yesterdays, the gifts of memories, love and laughter as they create the hopes of tomorrows.

Please visit our on-line grief discussions groups athttp://www.hospicewr.org/discussions/grief/.

Please like us on Facebook at https://www.facebook.com/ESPBCenter.

This article was also posted on ShareWIK.

 

When Illness Prevails, Time Can Be a Gift

October 13, 2014

All of us will experience the death of a loved one at some point in our lives. Perhaps it will be the expected death of an elderly, ailing relative or maybe it will be the sudden and unexpected demise of a young motorcyclist.  Another more common scenario is that the one you love becomes seriously ill and although you know he or she is dying, when it happens it comes as a great shock.  You are overwhelmed by powerful emotions and it feels like a sudden death.

In sudden or traumatic death, the event is unexpected and abrupt. Life is turned upside down.  The person you loved was taken away without any warning.  Nothing makes sense.  And, there was no time to do any of the end-of-life “things” that one can address when the death can be anticipated.  There was no time for reconciliation, for finishing unfinished business, for saying “I love you” or “Good-bye.”

But when your loved one is seriously ill and you know that the end of his or her life is near, you can use this luxury of time as an opportunity to be together – to share thoughts, feelings and memories. During this pre-death time, as the illness advances, wonderful things can happen and while it won’t take away the pain of grief post death, it may soften it.

Here are some considerations: Communication between individuals can be difficult even when things are good, but it’s so important to figure out how to communicate during this time without hurting feelings.  It is through communication that we can learn what is meaningful and important at this time.  It is through communication, that one can reconcile relationships and find closure.

This can be a time to reflect on the past.  Remembering and telling stories, looking at pictures and listening to familiar music can be helpful.  Good memories can be fuel for conversation and the stories produced can be passed on from generation to generation, keeping the spirit of the person alive.  Reminiscences often kindle the feelings of meaning and purpose.

There is no right or wrong way to grieve and no one can be truly prepared when death happens. Whether death is sudden or expected, grief hurts. If you are able to share time together as an illness progresses, it will be a gift you always cherish.  Remember, you do not have to grieve alone.

 

Please visit our on-line grief discussions groups at http://www.hospicewr.org/discussions/grief/.

Please like us on Facebook at https://www.facebook.com/ESPBCenter.

This article can also be seen on ShareWIK.

Explaining Suicide to Children

September 10, 2014

In light of Robin Williams’ recent death, this post is about suicide – specifically explaining the suicide of a loved one to a child. Suicide is a difficult topic to speak about.  It’s hard for adults to understand and difficult to explain to children. Children can cope better with difficult topics and feelings when they are able to talk openly about them.

Here are some common feelings children experience after a suicide:

  • Abandonment
  • That the death is their fault
  • Afraid they will die too
  • Worried  someone else they love will die
  • Guilt, sadness, embarrassment
  • Confusion, shock, anger, loneliness, or numbness.

Beginning the conversation could be the most difficult part, but once you start you are on your way. Here are some tips to help you:

  • Find a place where you can talk quietly without interruption.
  • Include another adult to increase your comfort level.
  • Tell the truth.
  • Talk in a calm, straight forward manner and use age-appropriate language.
  • Begin by  saying, Johnny, sit down, I have something I need to tell you. If there is more than one child, you can tell them together but in a way that the youngest can understand. The older ones can ask more questions later.
  • Recognize that very young children (three and under) don’t understand the permanence of death. You can say, Daddy has      died and I am sad. I will take care of you.
  • Offer more information to children ages three to six. You can say, Daddy has died and I am very sad.  That’s why you’ve seen me crying. Dead means the person can’t eat, talk or hear. The body has stopped working and cannot be fixed.
  • Provide reassurance. If the child asks how Daddy died, you can say Daddy died by suicide which means he killed himself. The rest of the conversation will depend on the child’s response. That may be plenty of information for the moment.

 Older children will have more direct questions. Here are some possible answers: 

  • He had an illness called depression. It’s different from having a bad day.
  • I don’t know – I wish I knew.
  • He didn’t know how to get help or see any other way to stop the pain.
  • Suicide is complicated. We’ll never know exactly what went through his mind or what he was feeling, but he must have been in horrible pain.

It’s important to remember that the way depression impacts our lives varies greatly from normal reactions of sadness to extreme and persistent sadness that limits our day-to-day routines.

Extreme and persistent sadness is called clinical depression. In most cases, clinical depression is successfully treated by medical treatment and psychotherapy. Even so, a small number of people die as a result of depression. Make sure to reinforce that suicide is not a solution. Instead, there are always other choices to solve problems and access support.

Children need to know that the person who died loved them and they need to be assured over and over that they did not cause the death. Keep in mind that children are intermittent grievers. Be prepared to talk about the suicide several times. You may have this conversation multiple times over the days, weeks and years that follow. You may have it in small doses throughout the child’s development. Their need for information will transform over time. 

Please know that you do not have to grieve alone. Consider individual counseling and/or support groups. They can be very helpful for you and your child. Be kind to yourself and available to your child. 

National Suicide Prevention Lifeline: 1-800-273-TALK (8255)

Please visit our on-line grief discussions groups at http://www.hospicewr.org/discussions/grief/.

Please like us on Facebook at https://www.facebook.com/ESPBCenter

This article can also be seen on ShareWIK.

The Aging of Adults with Special Needs

August 15, 2014

Do you know an adult with special needs living with elderly parents?  Do you have an adult sibling who fits this category?  Have you considered what will happen when your parents die?  Will your sibling need to relocate?  Will he or she come live with you?

Adults with autism, intellectual disabilities (formerly known as mental retardation), Down syndrome and other special needs are living longer and living at home with their elderly parents.  The aging of adult children with special needs presents unique challenges and demands.  One area to address is grief and loss. 

In the bereavement center, we serve a growing number of individuals with special needs who’ve been uprooted from their environment after the death of their last living parent.  In addition to grieving the death, they are experiencing many significant secondary losses.  These include having to move from their home, their city, their job and their friends.  All that was familiar and part of their routine has suddenly been pulled from them.  This is not only tragic, but overwhelming to the grieving person with special needs.  I knew who to call when I lived in Pittsburgh.  I don’t know who to call here.

One significant challenge is the unwillingness of elderly parents to place their aging special needs child in a group home.  They keep their child home out of love, but sometimes the best intentions are not always in the best interest for long term care. The elderly parent may have their own health challenges and have difficulty being a caregiver for an aging child with special needs. In addition, every elderly parent will die. It’s hard to think about this, but if the plan is to eventually move the adult child to a group, assisted living, or nursing home, it may be helpful to consider doing this before the parent dies. It can help ease the transition to a new living environment which makes for one less loss after the death.

Thinking long term about special needs adults takes the concepts of advance care planning to a whole new level.  Your town may have a Geriatric Case Manager or some such healthcare professional that can help you navigate the needs of this aging population.

Learn about:

  • Available entitlements and benefits
  • Community services for those with lifelong changes
  • Legal tools and attorneys who can create a long term plan for oversight of the whole family
  • Respite opportunities
  • Housing and group home living arrangements

Yes, these are difficult things to think about, but careful consideration and planning will be beneficial for everyone.

Start the conversation. 

Please visit our on-line grief discussions groups at http://www.hospicewr.org/discussions/grief/.

Please like us on Facebook at https://www.facebook.com/ESPBCenter.

This post can also be viewed at ShareWIK.com

Mindfulness and Grief

July 8, 2014

Mindfulness means paying attention in a particular way: on purpose, in the present moment, and non-judgmentally.    Jon Kabat-Zinn, Ph.D, Wherever You Go, There You Are

Mindfulness is a buzzword these days but what exactly is it and how does it relate to grief?  Mindfulness is the practice of purposely focusing your attention on the present moment and accepting it without judgment. Practicing mindfulness has been proven to improve both mental and physical health. As such, it can be a great tool to use during the grieving process when you find yourself both physically and mentally exhausted. 

Mindfulness can ease your physical symptoms of grief, help calm your mind, regulate difficult emotions and improve your ability to focus on the present. It can increase compassion toward yourself and others and help you make meaning of the loss.

There are many ways to practice mindfulness. All are a form of meditation. Some folks learn to meditate on their own by following instructions in books or recordings and others benefit from the support of an instructor or group.  It takes practice to become comfortable with these techniques. If one method doesn’t work for you, try another.

Learning to stay in the present is a less formal approach to mindfulness. You can practice during any activity.  Here are four helpful tips:

  1. Start by bringing your attention to the sensations in your body.
  2. Breathe in through your nose and out through your mouth.
  1. Proceed with the task at hand slowly and with intention.
  2. Engage all of your senses. Be aware of sight, touch, smell and sound.

When you notice that your mind has wandered from the task at hand, gently bring your attention back to the moment, focus on your breath and sensations.

The goal of any mindfulness practice is to achieve an alert state of focused relaxation by paying attention to thoughts and sensations without judgment. Accept whatever arises in your awareness at each moment. Most importantly, mindfulness involves being kind and forgiving toward yourself. 

Grief is a powerful emotion and can be overwhelming.  Mindfulness can help navigate the vast feelings of grief. You may find that you can allow the grief to rise up, observe it, hold it intentionally in awareness and notice that grief ebbs and flows.

 Please visit our on-line grief discussions groups at http://www.hospicewr.org/discussions/grief/.

Please like us on Facebook at https://www.facebook.com/ESPBCenter

This post can also be seen at ShareWIK.com.

Pregnancy Loss

June 9, 2014

As soon as couples find out they’re pregnant, a relationship forms with the unborn child. Pregnant moms are drawn to the windows of maternity stores. Prospective parents pick up little footballs, tiaras and tea sets. Outfits and car seats are carefully selected for the ride home from the hospital. But, all of those loving conversations between partners can come to an abrupt halt.

Pregnancy loss generally includes miscarriage, stillbirth, and neo-natal death which occurs in the first 28 days of life. While more and more folks acknowledge the hardship of pregnancy loss, it is generally minimized in our society. For those that have experienced it, there is nothing minimal about it. The symptoms and intensity of grief are the same as any other type of loss. There are also some unique grief issues that accompany pregnancy loss which aren’t present with other types of deaths.

There can be an extended physical & hormonal adjustment period for the mom. And there is the potential for future medical risks, as well as genetic and congenital factors.

Issues surround subsequent pregnancies. Couples struggle with whether or not to become pregnant again and if so, when. They may fear that what had just happened will happen again. Subsequent pregnancies are often laden with increased fears and anxiety. There is less “bliss” in being pregnant. Moms are hyper vigilant to any unrecognizable physical issues and contact their physician more often. They may not want to tell others they’re pregnant and some experience relief when the pregnancy lasts longer than when the previous baby died.

And there are triggers everywhere.

With the warmer weather, all those babies that were born during the winter seem to be out and about. The landscape is dotted with strollers that act as reminders of the loss. For some, it may be difficult to be around other pregnant women or to be excited for family or friends who are pregnant. Others may feel emotionally unable to go to a baby shower or perhaps are being avoided by pregnant friends.

Both the due date and the date-of-death can be difficult triggers.

Rituals and funerals can help. Quite often, there are few memories to draw on. Rituals do what words can’t. Rituals can help make a memory, add significance to the baby’s life and create an event for family participation. Many times families are unaware of these options, but you can create personalized rituals in addition to blessings, baptisms and funerals. It’s never too late to have a ritual. It’s a time where you can honor your deceased baby, validate the importance of their existence and celebrate their being.

Please know that families do not have to grieve alone. If family and friends are unable to support you, there are support groups, on-line communities and healthcare professionals to companion you on this difficult journey. 

Please visit our on-line grief discussions groups at http://www.hospicewr.org/discussions/grief/.

Please like us on Facebook at https://www.facebook.com/ESPBCenter

This post can also be found on ShareWIK.

Do Toddlers & Pre-schoolers Grieve? They Sure Do.

May 19, 2014

J Micah and DDChild: When is grandpa coming back?

Mom: I’m sorry sweetie. Grandpa died. He’s not coming back.

Child: Okay, when can we go visit him? 

Like adults, children will grieve in their own unique way. There is a wide variability in the understanding of death at a young age. Accepted developmental and grief responses of 3-5 year old children include a lack of time/space concepts, belief of death as temporary and reversible, magical thinking, fear of abandonment, and a need for physical comfort, reassurance and a stable routine. 

For younger children, death is experienced as separation. They have limited verbal ability to express themselves. They may fear for their own safety or fear another person will die.  Children ask questions repeatedly and often exhibit regressive behavior. They will need to hear the death story many times. 

Children often attune themselves to parent’s or adult’s needs. They may tell you what you want to hear. Feelings may include sadness, anger, anxiety, confusion, and loneliness. However, they often don’t have the verbal skills or vocabulary to articulate their feelings. Children take “breaks” from these big feelings, as they grieve intermittently and in spurts. 

Here are some tips for helping younger children: 

  • Use simple, direct language.
  • Don’t “protect your child from the truth” but use good judgment in how you explain the death.
  • Give yourself time to talk and time for your child to ask questions.
  • Let your children show their feelings.  Accept their process – don’t pressure them to “get over it.”
  • Explain that when people die, they don’t eat, sleep or breathe.
  • Reassure your child that you will be there for them.  Ask:  What can I do to help?
  • Keep your child’s life as normal as possible.
  • Find ways to help your child connect to the deceased person:  draw pictures, have pictures available, etc.
  • Share your feelings.
  • Each child’s behavior is the best solution they have for a problem at the moment.
  • Reassure them that they can cope with this and won’t forget their loved one.
  • Remember support, nurturance, and opportunities for creative play and stability are essential building blocks for your child’s development. 

All of your emotions are a tribute to the life you shared together.

 

Please visit our on-line grief discussions groups at http://www.hospicewr.org/discussions/grief/.

Please like us on Facebook at https://www.facebook.com/ESPBCenter

Grieving the Death of a Partner or Spouse

April 21, 2014

After your spouse or partner dies, you transition from being a couple to being alone. This loss can bring significant changes to your life and it can be difficult to function in a world that has suddenly become so different. The life you shared may feel like it’s crumbled. Here are some ideas to consider as you work your way through your grief:

  • There’s no right or wrong or good or bad way to grieve. Whatever you are feeling is okay.
  • You may find that you continue to turn to your loved one to share a story or ask a question. This is natural. In fact, many people find it helpful to continue to speak with their deceased partner or spouse.
  • Continue to attend to practical matters. Funeral arrangements, thank you notes, the estate, insurance, and bank accounts all require attention and energy. Do what you must and postpone what you can.
  • You may be struggling with what to do with your partner’s personal possessions. Others may offer you advice. Trust your instincts about when it’s the right time for you to go through these items. This is different for each person.
  • Communicate with friends and family about what is helpful and what is not helpful to you. You may feel shy about expressing how you feel but know that others will appreciate knowing best how to support you.
  • It may be painful to talk about your deceased love one. Continue to include them in your thoughts and conversation through your tears and honor the importance he or she played in your life.
  • Stress and grief can have an impact on the immune system. You may not feel like attending to your health, but work towards maintaining your health as soon as you feel able. Attend to getting proper nutrition and exercise.
  • Don’t be pushed into making decisions that you aren’t ready to make. You will need to take control of your financial resources and needs, but take the time to think things through before making any commitments.
  • If you think that your emotions are getting the best of you, know that there is help out there in the form of support groups and individual counselling. Reach out to others.

If you feel like you’re on a roller coaster of emotions, know that you aren’t alone. It’s okay to laugh and to cry. Don’t feel as if you need to hold onto only negative emotions. All of your emotions are a tribute to the life you shared together.

Please join one of our spousal loss support groups.

Please visit our on-line grief discussions groups.

This column is also posted on ShareWIK.com.

 

When Grief Breaks Your Heart

March 13, 2014

Can you die from a broken heart? Yes, you can.

There is a heart condition called stress induced cardiomyopathy or takotsubo cardiomyopathy—commonly referred to as “broken heart syndrome” because it often occurs during periods of high emotional stress and grief.

First recognized by Japanese doctors in the 1990s, the condition is characterized by a weakening of the left ventricle. The heart chamber changes shape, narrowing at the top and ballooning at the bottom. Thankfully it’s reversible.

Still, death during bereavement occurs more often than one might expect. At our hospice, time and again we see cases where spouses die 12 months apart. Recently, we had a situation where a woman had a heart attack at her husband’s funeral. It’s quite sad.

While we can attest to this anecdotally, research confirms our stories.

In a recent study by Carey et al, the authors found that the risk of stress-induced cardiomyopathy is highest in the first month after a death and then slowly declines during the first year. In a previous study (Shah, et al.), the same authors found that good health and material circumstances do no protect older adults from increased mortality rates while grieving the death of a loved one.
 
The stress of grief has health effects. Common grief reactions like loss of sleep and appetite can suppress the immune system which could exacerbate other medical conditions. 

So what can we do?

First, we can be aware that it’s a real risk. We can offer support to older adults during the first few weeks and months after the death of a loved one. In addition to offering support, we need to encourage older adults to seek medical attention and take care of themselves physically as well as emotionally. Many older adults disenfranchise their own grief and need to know that it’s okay to mourn the loss of their life partner. Support is available through grief groups, friends, faith communities and professional counselors.

No one needs to grieve alone.

 References:

Carey, Iain M.; Shah, Sunil M.; DeWilde, Stephen; Harris, Tess; Victor, Christina, R.; Cook, Derek G. Increased Risk of Acute Cardiovascular Events After Partner Bereavement: :  A Matched Cohort StudyJAMA Intern Med. Published online February 24, 2014.

Shah, Sunil M.; Carey, Iain M.; Harris, Tess; DeWilde, Stephen; Victor, Christina, R.; Cook, Derek G. Do Good Health and Material Circumstances Protect Older People From the Increased Risk of Death After Bereavement?American Journal of Epidemiology,(2013) 177 (4): 375.

Please join our grief discussion groups.