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Links & Resources

Caregiver Support

“What now?”

When you and your loved ones are overwhelmed and wonder “what now?” Western Reserve Navigator can start helping early on, right after diagnosis and throughout the course of the illness. 

Our Tools

Caregiver Guide

Care for the Caregiver

Choosing Caregiver Assistance Worksheet

Palliative Care Video 

The Myths and Facts about Hospice Care

Additional Resources

Aging Care – connecting people caring for elderly parents.

ALS Association – information, resources and support for patients and caregivers facing ALS.

Medicare Rights Center – non-profit organization offers answers to questions about Medicare, describes education and services and provides news and publications.

National Family Caregivers Association – grassroots organization created to educate, support, empower and speak up for those who care for chronically ill, aged or disabled loved ones.

Comfort Care

Caring Connections – program of the National Hospice and Palliative Care Organization (NHPCO), is a national consumer engagement initiative to improve care at the end of life, supported by a grant from The Robert Wood Johnson Foundation.

Center to Improve Care for the Dying – research, public advocacy and education activities to improve the care of the dying and their families.

Caring for a Loved One with COPD – When you care for someone with chronic obstructive pulmonary disease (COPD) at home, you may have numerous responsibilities. brought to you by the Mesothelioma Center – committed to being a comprehensive one-stop resource for all asbestos and mesothelioma related issues, from occupational exposure to treatment options.

Open Society Institute – The Project on Death in America wants to understand and transform the culture and experience of dying and bereavement through initiatives in research, scholarship, the humanities and the arts.

Sociology of Death and Dying – an exploration of death in the cultural order, the broad realm of social reality – the institutional orders, like religion, that filter and mold our experiences -and, finally, the individual order.

Supportive Care of the Dying – Coalition for Compassionate Care Selected Members of the Catholic Health Association (Sylvia McSkimming, Ph.D., Project Coordinator; Portland, OR).

Toolkit of Instruments to Measure End-of-Life Care – a comprehensive, annotated bibliography of instruments to measure the quality of care at the end of life.

Grief & Loss Resources

Planning for the Future

Before I Die – site covering a program that explores the medical, ethical and social issues surrounding end-of-life care in America today.

Ethical Wills: Preserving Your Legacy of Values – leave a legacy of your values.

Legacy: Where life stories live on – celebrate life stories in words and pictures for now and for the future.

SeniorNet – site that provides older adults with education and access to computer technologies to enhance their lives and enable them to share their knowledge and wisdom.

For Professionals

American Academy of Hospice and Palliative Medicine – organization for physicians dedicated to the advancement of hospice/palliative medicine, its practice, research and education.

Bioethics Resource Links – academic resource for medical humanities.

Continuing Education Links – locates your CE, CEU and CME resources in an easy-to-navigate format.

Growth House – hoping to improve the quality of care for people who are dying through public education and global professional collaboration.

National Hospice and Palliative Care Organization – non-profit organization representing hospice and palliative care programs and professionals in the U.S.

Midwest Care Alliance – non-profit organization representing hospice and palliative care programs and professionals in Ohio.

Prentiss Care Networks – Case Western Reserve University Center on Aging and Health provides caregiver training through the Prentiss Care Networks project.